Lesson 4 - Cerebral Palsy - Deafness

Presentation of Theoretical Construct

Reading: Chapter 14

 

Lecture Information: Cerebral Palsy - Deafness

                                                        i.      Cerebral palsy--also known as CP--is a condition caused by injury to the parts of the brain that control our ability to use our muscles and bodies. Cerebral means having to do with the brain. Palsy means weakness or problems with using the muscles. Often the injury happens before birth, sometimes during delivery, or, like Jen, soon after being born. CP can be mild, moderate, or severe. Mild CP may mean a child is clumsy. Moderate CP may mean the child walks with a limp. He or she may need a special leg brace or a cane. More severe CP can affect all parts of a child's physical abilities. A child with moderate or severe CP may have to use a wheelchair and other special equipment. Sometimes children with CP can also have learning problems, problems with hearing or seeing (called sensory problems), or mental retardation. Usually, the greater the injury to the brain, the more severe the CP. However, CP doesn't get worse over time, and most children with CP have a normal life span.

1.  Cerebral palsy types and levels

a.  Spastic CP is where there is too much muscle tone or tightness. Movements are stiff, especially in the legs, arms, and/or back. Children with this form of CP move their legs awkwardly, turning in or scissoring their legs as they try to walk. This is the most common form of CP.

b.  Athetoid CP (also called dyskinetic CP) can affect movements of the entire body. Typically, this form of CP involves slow, uncontrolled body movements and low muscle tone that makes it hard for the person to sit straight and walk.

c.  Ataxic cerebral palsy affects balance and coordination. It is characterized by an unsteady gait and a wide base of support.  It also interferes difficulty with motions that require precise coordination, such as writing.

d.  Mixed CP is a combination of the symptoms listed above. A child with mixed CP has both high and low tone muscle. Some muscles are too tight, and others are too loose, creating a mix of stiffness and involuntary movements

e.  Levels

                                                                                                                                i.      Diplegia--This means only the legs are affected.

                                                                                                                           ii.      Hemiplegia--This means one half of the body (such as the right arm and leg) is affected.

                                                                                                                      iii.      Quadriplegia--This means both arms and legs are affected, sometimes including the facial muscles and torso.

2.  Educational impact - A child with CP can face many challenges in school and is likely to need individualized help. Fortunately, states are responsible for meeting the educational needs of children with disabilities.  For children up to age three, services are provided through an early intervention system. Staff work with the child's family to develop what is known as an Individualized Family Services Plan, or IFSP. The IFSP will describe the child's unique needs as well as the services the child will receive to address those needs. The IFSP will also emphasize the unique needs of the family, so that parents and other family members will know how to help their young child with CP. Early intervention services may be provided on a sliding-fee basis, meaning that the costs to the family will depend upon their income.

3.  For school-aged children, including preschoolers, special education and related services will be provided through the school system. School staff will work with the child's parents to develop an Individualized Education Program, or IEP. The IEP is similar to an IFSP in that it describes the child's unique needs and the services that have been designed to meet those needs. Special education and related services, which can include PT, OT, and speech-language pathology, are provided at no cost to parents.

                                                   ii.      Deafness

1.  The word deaf can have very different meanings depending on the background of the person speaking or the context in which the word is used. Medically, the term can be used to mean having profound hearing loss, a physiological condition causing an inability to receive or process aural stimulation (i.e., sound). Culturally, it can be used in reference to individuals who see themselves as part of Deaf culture. The word “deaf” used in a cultural sense is almost always capitalized (Deaf), while in a medical sense is almost always lower case (deaf).

2.  In the medical view, the global deaf population is roughly estimated to be 0.1% of the total population (1 in 1000). [1] The figure is likely to be higher in developing countries than developed countries due to restricted access to health care, and, in some cultures, due to the high rate of intra-familial marriages, as in some of the Beduin tribes in the southern part of Israel. Worldwide, at least 5% of the population (1 in 20) is estimated to have less than average hearing. The great majority of people with less than average hearing are elderly or developed hearing loss after leaving school.

3.  A minority of deaf people are part of Deaf culture. They are mostly either individuals who were born deaf (Pre-lingual) or became deaf at an early age (Para-lingual or Post-lingual) and who have a "severe or profound hearing loss;" or are children of deaf parents. Members of Deaf culture use sign language as their primary language and often emphatically see themselves as not disabled, but rather as members of a cultural or language minority. Members of this group use Deaf as a label of cultural identity much more than as an expression of hearing status.  Deafness is not limited to humans, but can also occur in other animals

 

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